Jesy Nelson has been seen stepping out with her twin daughters for the first time since revealing their devastating health diagnosis — a moment that quietly captured the attention of the nation.
The former Little Mix star, 34, was supported by her mother Janice as the trio headed out for a walk in Essex, marking Jesy’s first public appearance with eight-month-old twins Ocean Jade and Story Monroe since she disclosed that both babies have been diagnosed with SMA Type 1, a rare and severe genetic neuromuscular disorder.
Earlier this month, Jesy courageously opened up about the condition, which causes progressive muscle weakness and atrophy, explaining that her daughters may require round-the-clock care and could become wheelchair users for life.
The emotional outing came just days after reports emerged that Jesy had also split from her fiancé Zion Foster, whom she became engaged to in September 2025. Sources close to the couple have since confirmed that while their romantic relationship has ended, they remain “fully united” in co-parenting their daughters.
Jesy had previously revealed that her babies were not tested for SMA at birth, as screening for the condition is not yet routine for newborns across the UK. The singer admitted that had the diagnosis been made earlier, there may have been an opportunity to “save their legs,” a revelation that has fuelled her growing campaign for change.
Appearing on This Morning, Jesy spoke through tears as she described the reality facing her family, explaining that SMA Type 1 can often be largely prevented if treated pre-symptomatically — at or near birth — thanks to life-changing treatments now available.
On Tuesday, Jesy took her fight directly to Westminster, meeting with Health Secretary Wes Streeting, where her emotional plea left the MP visibly struggling to hold back tears. During the meeting, Jesy insisted that “no parent should ever have to go through this,” urging the government to make SMA screening part of the routine heel-prick test for all newborns.
The singer stressed that families across the UK have been “screaming and shouting” for years about the lack of screening, questioning why it took someone with her platform to finally bring national attention to the issue.
The UK National Screening Committee is currently reviewing SMA testing once again, with an evaluation underway that is expected to continue until 2028. Wes Streeting acknowledged the urgency of Jesy’s campaign, admitting that earlier diagnosis could have made a profound difference and pledging to push for faster and wider screening.
During the interview, Jesy broke down after showing Wes a video of a child living with SMA Type 1, explaining that seeing the reality firsthand makes clear how life-altering the condition can be. The Health Secretary later admitted the footage had deeply affected him, vowing to pursue change on behalf of the SMA community.
Despite the heartbreak, Jesy has continued to show strength, supported closely by her family. Zion Foster also addressed the situation in a deeply personal Instagram post this week, sharing a self-written poem about acceptance, unconditional love and coming to terms with their daughters’ diagnosis, while praising Jesy as a mother.
The former couple, who were together for three years before their split, have both made clear that their daughters’ well-being remains their absolute priority.
As Jesy continues to balance motherhood, advocacy and healing, her first public appearance with Ocean and Story has become a powerful symbol of resilience — and a reminder of why her campaign is resonating so deeply with parents across the country.
